USCDI Export for the Public
Classification Level Sort descending | Data Class | Data Class Description | Data Element | Data Element Description | Applicable Standards | Submitter Name | Submitter Organization | Submission Date |
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Level 0 | Social Determinants of Health | Self-Identified Need for Contraception (SINC) | Self-Identified Need for Contraception screening tool for primary care settings. |
Self-Identified Need for Contraception (SINC) LOINC: 98076-3 |
Dr. Christine Dehlendorf | Person-Centered Reproductive Health Program, Family and Community Medicine, University of California, San Francisco | ||
Level 0 | Clinical Notes | Narrative patient data relevant to the context identified by note types.
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Cause of Death | Cause of death information includes the sequence of events leading to death as well as other conditions significantly contributing to death. The underlying cause of death may be different than the terminal condition. This may include summary of death note, and/or death information that may be captured within the discharge summary note or other cause of death documentation within the clinical notes section. |
LOINC: Summary of death note: 47046-8: https://loinc.org/47046-8/ Physician Summary of death note: 83796-3: https://loinc.org/83796-3/ Nurse Summary of death note: 84273-2: https://loinc.org/84273-2/ US Standard Certificate of Death: https://www.cdc.gov/nchs/data/dvs/DEATH11-03final-ACC.pdf Hepatitis C Case Report Form: https://www.cdc.gov/hepatitis/pdfs/HepatitisCaseRprtForm.pdf Supporting Links: PHINVADS Value Set: https://phinvads.cdc.gov/vads/ViewValueSet.action?oid=2.16.840.1.114222.4.11.3593 |
Maria Michaels | CDC | |
Level 0 | Diagnostic Imaging | Tests that result in visual images requiring interpretation by a credentialed professional. |
Imaging studies performed | The indication of an imaging diagnostic studies performed (with type) and completed on patients, including DEXA, mammography, bone scans |
LOINC (i.e. OID: 2.16.840.1.113883.3.526.3.320) HCPCS |
Joel Andress | Centers for Medicare and Medicaid Services (CMS) Center for Clinical Standards and Quality (CCSQ) | |
Level 0 | Travel Information | Transportation Details | Information about transportation details such as the type of transport along with any associated information (e.g., name of cruise ship, flight number, airport, seat number, cabin number). |
HL7 FHIR: US Public Health Transportation Details profile HL7 CDA: Transportation Details Organizer/Transportation Details Observation templates VSAC Value Set: Transport vehicle type |
Nedra Garrett | CDC | ||
Level 0 | Cancer Care | Tumor Behavior | The way a tumor acts within the body, e.g., ability to grow, invade other areas and/or metastasize. |
Tumor Histologic Type: International Classification of Diseases for Oncology 3.2, with additional values accepted by the WHO-IARC but not included in the official published documents. SNOMED International, Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, 2021 Release (month TBD) Tumor Behavior: International Classification of Diseases for Oncology 3.2 Tumor Primary Site: International Classification of Diseases for Oncology 3.2. SNOMED International, Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, September 2020 Release Tumor Laterality: SNOMED International, Systematized Nomenclature of Medicine Clinical Terms (SNOMED CT®) U.S. Edition, September 2020 Release – mCODE Laterality Value Set Tumor Clinical Grade: North American Association of Central Cancer Registries Grade Clinical |
Wendy Blumenthal | Centers for Disease Control and Prevention (CDC) | ||
Level 0 | Medical Devices | An instrument, machine, appliance, implant, software or other article intended to be used for a medical purpose. |
Unique Mobile Health Application Identifier (UMHAI) | This is a unique identifier that uniquely identifies mobile health application instance as installed on a mobile device. Related data elements would include Application name, App Builder, version, build number, hosting device, unique identifiers [similar to a Vehicle Identification Number (VIN) used to track and identify individual vehicle]. Unique Mobile Health Application Identifier enables identification of application instance to facilitate recall, maintenance, transparency and traceability. |
Gora Datta | CAL2CAL | ||
Level 0 | Travel Information | Purpose of Travel | Purpose of travel (business, tourism, etc.) |
HL7 FHIR: US Public Health Travel History profile (Observation.component) HL7 CDA: Purpose of Travel Observation template SNOMED: 280147009 "Travel Purpose" PHIN VADS Value Set: PHVS_TravelPurpose_CDC |
Nedra Garrett | CDC | ||
Level 0 | Pregnancy Information | Pregnancy Intention Screening | Screening patient for their desire to become pregnant in the next 12 months in order to determine which reproductive health services may be relevant to offer the patient in that encounter. |
Pregnancy Intention Screening Question: Pregnancy intention in the next year - Reported SNOMEDCT response option value set OID: 2.16.840.1.113762.1.4.1166.22 |
Emily Decker | Upstream USA | ||
Level 0 | Health Status Assessments | Assessments of a health-related matter of interest, importance, or worry to a patient, patient’s family, or patient’s healthcare provider that could identify a need, problem, or condition. |
Sleep Log /Diary | A patient with a sleep problem will often be asked to keep a Sleep Log or Diary , record of sleep behaviors usually including sleep time. wake time, sleep duration, frequency and duration of sleep interruptions, medications, perceived sleep quality, caffeine intake, etc. |
SNOMED CT, ICD-10/11 and HL7 all contain terminologies that cover Sleep Health. International Statistical Classification of Diseases and Related Health Problems (11th ed,; ICD-11; World Health Organization, 2019) https://www.nlm.nih.gov/healthit/snomedct/index.html https://icd.who.int/en https://www.hl7.org/fhir/terminologies-systems.html |
Christopher M. Miller, MD | National Heart Lung and Blood Institute, NIH | |
Level 0 | Clinical Tests | Non-imaging and non-laboratory tests performed that result in structured or unstructured findings specific to the patient to facilitate the diagnosis and management of conditions. |
Audiogram | Standard under development by HL7 in Diagnostic Audiology Reporting HL7 V2 Implementation Guide |
Troy Kaji | Contra Costa Health Services | ||
Level 0 | Patient Demographics/Information | Data used to categorize individuals for identification, records matching, and other purposes. |
Tribal Enrollment | A tribe of which the patient is an enrolled member. |
HL7 FHIR: US Public Health Tribal Affiliation extension |
Laura Conn | ||
Level 0 | Referral | Referral coverage | Insurance plans, coverage extensions, pre-authorizations and/or pre-determinations that may be needed for delivering the requested service. |
Routine Interfacility Patient Transport (RIPT) - https://www.ihe.net/uploadedFiles/Documents/PCC/IHE_PCC_Suppl_RIPT.pdf https://hl7.org/fhir/R4/servicerequest.html |
Adam Bazer, MPD | Integrating the Healthcare Enterprise USA (IHE USA) | ||
Level 0 | Referral | Referral code | A code that identifies a particular service (i.e., procedure, diagnostic investigation, or panel of investigations) that have been requested. |
Routine Interfacility Patient Transport (RIPT) - https://www.ihe.net/uploadedFiles/Documents/PCC/IHE_PCC_Suppl_RIPT.pdf https://hl7.org/fhir/R4/servicerequest.html |
Adam Bazer, MPD | Integrating the Healthcare Enterprise USA (IHE USA) | ||
Level 0 | Referral | Referral requestor | The individual who initiated the request and has responsibility for its activation. |
Routine Interfacility Patient Transport (RIPT) - https://www.ihe.net/uploadedFiles/Documents/PCC/IHE_PCC_Suppl_RIPT.pdf https://hl7.org/fhir/R4/servicerequest.html |
Adam Bazer, MPD | Integrating the Healthcare Enterprise USA (IHE USA) | ||
Level 0 | Care Team Members | Information about a person who participates or is expected to participate in the care of a patient. |
Proxy Decision Maker | Individual designated by the patient to make healthcare decisions for the patient in the event the patient is unable. |
Holly Miller, MD | MedAllies | ||
Level 0 | Work Information | Veteran Status | Military service in the armed forces of the United States or other nations, including the length and branch of service, the military occupation, the location and type of duty (e.g., in the United States or abroad with combat, combat support, or noncombat duties), and any ongoing illness, injury, limitation, or disability that began during military service. (Institute of Medicine, Capturing Social and Behavioral Domains in Electronic Health Records, Phase 2, p. 297 (2014).) |
Yes, a vocabulary/terminology standard and/or technical specification exists for each proposed data element. The Gravity Project attaches a letter with an overview. For (1) Food Insecurity: LOINC, SNOMED-CT, ICD-10-CM, and CPT/HCPCS terminologies are specified by value set in NLM’s Value Set Authority Center (VSAC). For (2) Housing Instability and Homelessness, (3) Inadequate Housing, (4) Transportation Insecurity, (5), Financial Strain, (6) Social Isolation, (7) Stress, (8) Interpersonal Violence, (9) Education, (10) Employment, and (11) Veteran Status: • The corresponding value sets are under development by the Gravity Project; • The value sets will be complete prior to publishing of USCDI v2.0; • Even if a particular value set might be incomplete, the value set will be citable. The technical specifications for value sets under each data element are described below: • Assessments: LOINC • Health Concerns/Problems/Diagnoses: SNOMED-CT, ICD-10-CM • Goals: LOINC • Procedures/Interventions: SNOMED-CT (clinical), CPT/HCPCS (billing) • Outcomes: LOINC (NCQA measures) • Consent (where needed): based on existing HL7 code systems |
Mark Savage for Gravity Project | Gravity Project | ||
Level 0 | Patient Summary and Plan | Information that guides treatment of the patient and recommendations for future treatment. |
Treatment Change | Treatment Change documents the reason for changes to the plan of treatment plan. The options for this data element are, for example: no change (continue treatment), planned change, no response to treatment, adverse reaction, patient request for alternative treatment. The first option (no change in treatment plan) can document a review of the treatment plan that did not require in a change of treatment. |
LOINC, SNOMED-CT, and FHIR see: https://search.loinc.org/searchLOINC/search.zul?query=functional+status http://hl7.org/fhir/us/mcode/ https://browser.ihtsdotools.org/?perspective=full&conceptId1=273472005&edition=MAIN/2020-07-31&release=&languages=en |
Andre Quina | MITRE | |
Level 0 | Problems | Condition, diagnosis, or reason for seeking medical attention. |
Disease Trend | Disease trend, also referred to as disease status, represents the clinician's overall judgment on the current trend of a condition, e.g., whether it is stable, worsening (progressing), or improving (responding). The judgment may be based a single type or multiple kinds of evidence, such as imaging data, physical examination, tumor measurements, laboratory data, etc. The condition trend can be reported multiple times during the course of a condition, each report representing the clinical judgement at that point in time. The element is important in assessing disease progression and determining the efficacy of treatments. |
HL7 FHIR Implementation Guide: minimal Common Oncology Data Elements (mCODE) Release 1 - US Realm | STU1 |
Andre Quina | MITRE | |
Level 0 | Patient Demographics/Information | Data used to categorize individuals for identification, records matching, and other purposes. |
Multiple Birth Order | If not a single birth then the order born in the delivery, live born or fetal death (1st, 2nd, 3rd, 4th, 5th, 6th, 7th, etc.). |
FHIR patient extension: birthplace FHIR patient address.period |
Adam Bazer, MPD | Integrating the Healthcare Enterprise USA (IHE USA) | |
Level 0 | Laboratory | Analysis of clinical specimens to obtain information about the health of a patient. |
Accession number | The unique identifier for a single instance of a specimen received by a laboratory and its analysis. |
Riki Merrick | Association of Public Health Laboratories |