Submitted By: Nedra Garrett
/ Centers for Disease Control and Prevention
|
Data Element Information |
Data Element Description |
Name of a person with a legal or familial relationship to a patient. |
Use Case Description(s) |
Use Case Description |
Mother’s maiden name and responsible party information is extremely important when matching patient records for minors, especially young infants that may not have name information yet. The IIS uses this information to identify, prevent, and resolve duplicated and fragmented patient records using an automated process.
|
Estimate the breadth of applicability of the use case(s) for this data element
|
There are multiple stakeholders that currently capture, access, use or exchange these data elements including:
• Electronic Health Records
• Immunization information systems and local and state departments of public health
• Providers
• Vital records |
Link to use case project page |
https://www.cdc.gov/vaccines/programs/iis/index.html |
Healthcare Aims |
- Improving the health of populations
- Improving provider experience of care
|
Maturity of Use and Technical Specifications for Data Element |
Applicable Standard(s) |
CDC-defined HL70063
https://www.hl7.org/special/Committees/projman/searchableProjectIndex.cfm?action=edit&ProjectNumber=1398?
|
Additional Specifications |
This information is contained the NK1-2 field in the HL7 v2 message. Additionally, there is a FHIR resource for related person: relatedperson.name and relatedperson.relationship. |
Current Use |
This data element has been used at scale between multiple different production environments to support the majority of anticipated stakeholders |
Supporting Artifacts |
HL7 v2.5.1 Implementation Guide for Immunization Messaging
HL7 v2.8.2 Implementation Guide: Immunization Messaging
Clinical Decision Support for Immunizations FHIR IG
AIRA Functional Standards Document
CDC Endorsed Data Elements
AIRA Functional Standards Document: https://repository.immregistries.org/files/resources/5a83216a1d369/aira_functional_guide_vol2_final.pdf
https://www.cdc.gov/vaccines/programs/iis/technical-guidance/hl7.html
|
Extent of exchange
|
5 or more. This data element has been tested at scale between multiple different production environments to support the majority of anticipated stakeholders. |
Supporting Artifacts |
HL7 v2.5.1 Implementation Guide for Immunization Messaging
HL7 v2.8.2 Implementation Guide: Immunization Messaging
FHIR CDSi
AIRA Functional Standards Document
CDC Endorsed Data Elements
CDC Endorsed Data Elements: https://www.cdc.gov/vaccines/programs/iis/core-data-elements.html
https://www.cdc.gov/vaccines/programs/iis/technical-guidance/hl7.html
|
Potential Challenges |
Restrictions on Standardization (e.g. proprietary code) |
There are no restrictions on these data elements. |
Restrictions on Use (e.g. licensing, user fees) |
There are no restrictions on these data elements. |
Privacy and Security Concerns |
There are privacy concerns with the use and exchange of these data elements, mainly mother’s maiden name. |
Estimate of Overall Burden |
Most EHRs should already store and message mother’s maiden name and next of kin information in HL7 v2 messages. |
Other Implementation Challenges |
N/A |
Submitted by nedragarrett_CDC on
CDC's Consolidated Comment for USCDI v5
Proposed change: