Information about a person who participates or is expected to participate in the care of a patient.

Data Element
Caregiver of disabled person
Description

Person serving as a primary caregiver for a disabled person.
Submitted By: Charles Mayo / University of Michigan, American Association of Physicists in Medicine
Data Element Information
Use Case Description(s)
Use Case Description Disability incidence is not strongly dependent on other SDOH measures such as race and socio-economic status but is multiplicative for their effects on access to care and treatment. It strongly impacts the lives of their primary caregivers and so compounds the effects on the individuals with disabilities. The disability community is an under-represented population and includes their care givers. Status as a caregiver for a person with disability impacts other SDOH measures such as employment status and access to insurance. The main use cases are impact on clinical care frameworks, access to care and health care policy
Estimate the breadth of applicability of the use case(s) for this data element This information is relevant for clinical care and health care policy. This element would be valuable for capture for all stakeholders.
Healthcare Aims
  • Improving patient experience of care (quality and/or satisfaction)
  • Improving the health of populations
  • Reducing the cost of care
  • Improving provider experience of care
Maturity of Use and Technical Specifications for Data Element
Applicable Standard(s) American Association of Physicists in Medicine Operational Ontology for Radiation Oncology has adapted the American Community Survey disability value set for this data element.
https://aapmbdsc.azurewebsites.net/
Additional Specifications N/A
Current Use Not currently captured or accessed with an organization
Extent of exchange N/A
Potential Challenges
Restrictions on Standardization (e.g. proprietary code) None
Restrictions on Use (e.g. licensing, user fees) None
Privacy and Security Concerns None
Estimate of Overall Burden Minimal. One question
ASTP Evaluation Details
Each submitted Data Element has been evaluated based on the following criteria. The overall Level classification is a composite of the maturity based on these individual criteria. This information can be used to identify areas that require additional work to raise the overall classification level and consideration for inclusion in future versions of USCDI
Criterion #1
Maturity - Current Standards		 Level 0 - Data element is not represented by a terminology standard or SDO-balloted technical specification or implementation guide.
Criterion #2
Maturity - Current Use 		Level 0 - Data element is captured, stored, or accessed in limited settings such as a pilot or proof of concept demonstration.
Criterion #3
Maturity - Current Exchange		 Level 0 - Data element is electronically exchanged in limited environments, such as connectathons or pilots.
Criterion #4
Use Case(s) - Breadth of Applicability		 Level 0 - Use cases apply to a limited number of care settings or specialties, or data element represents a specialization of other, more general data elements.

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