Precision Medicine

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The Precision Medicine Initiative (PMI), launched in 2015, is a nationwide initiative to move away from the “one-size-fits-all” approach to health care delivery and to instead tailor treatment and prevention strategies to people’s unique characteristics, including environment, lifestyle, and biology.

Federal agencies and health care organizations advance the Precision Medicine Initiative by collaborating on projects in support of tailored medicine.

ONC's Role in PMI

  • Accelerate innovative collaboration around pilots and testing of standards that support health IT interoperability for research
  • Adopt policies and standards to support privacy and security of cohort participant data
  • Advance standards that support a participant-driven approach to patient data contribution

ONC's Precision Medicine Initiative Activities

​​​​​​Ongoing Activities

  • Sync for Science:
    Collaboration between industry and federal government resulted in a pilot that allows individuals to access their health data and send it to researchers in support of the All of Us Research Program and precision medicine.
  • Sync for Genes Phase 2 – Integrating Genomic Data:
    Launched in Fall 2017, Phase 2 intends to focus on expanding the profile work from Phase 1 (see below) to support the integration of genomics information and clinical information at the point-of-care.

    Concluded Activities

    Related Programs

    ONC PCOR Projects
    ONC, in collaboration with multiple HHS agencies, has led a series of key projects that collectively develop policy, standards, and services necessary to expand the data infrastructure for patient-centered outcomes research. This work, funded by the Patient-Centered Outcomes Research Trust Fund (PCORTF), supports precision medicine by ensuring patient decisions are incorporated into research and care recommendations that best align with patient needs. Read more on PCOR.

    Other Federal Government PMI Programs

    • All of Us Research Program:
      The National Institutes of Health (NIH) leads this historic effort to gather data from one million or more people living in the United States to accelerate research and improve health through the delivery of precision medicine.All of Us logo
    • precisionFDA:
      precisionFDA is an online, cloud-based, portal that will allow scientists from industry, academia, government and other partners to come together to foster innovation and develop the science behind a method of “reading” DNA known as next-generation sequencing (or NGS). Blog post on precisionFDA.Precision FDA logo
    Content last reviewed on December 6, 2018
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