Data sharing is critical to realizing the future of precision medicine. Launched in 2018, the Advancing Standards for Precision Medicine (ASPM) project works to further the development and testing of standards for new and diverse types of health data. This ONC project is part of the Precision Medicine Initiative (PMI), and is being conducted in partnership with the National Institutes of Health’s All of Us Research Program. The ultimate goal is to make health data easier to share, curate, aggregate, and synthesize.
ASPM is focusing on standards in two areas:
- Mobile health, sensor, and wearable data
- Social determinants of health (SDOH) data
Standards for Mobile Health, Sensor, and Wearable Data
Mobile health tools, sensors, and wearables can allow patients and providers to monitor health status and adjust treatment between appointments. They can also collect data for research. Standards are critical for ensuring the data can be integrated and useful to healthcare providers and researchers.
The ASPM project aims to standardize remote collection and sharing of vital signs. ONC is working with relevant stakeholders to validate a standardized pathway for sharing vital sign data with an electronic health record (EHR) system. This effort aims to demonstrate the technical feasibility of sharing vital sign and mobile health measures.
ONC is working with several other collaborators in this area, including Open mHealth, Personal Health Connected Alliance, Integrating the Healthcare Enterprise (IHE) International, Health Level Seven International®, and the Institute of Electrical and Electronics Engineers.
Standards for Social Determinants of Health Data
SDOH include elements such as housing, transportation, food security, and income. Understanding their effects on health and healthcare is critical for research and clinical practice.
ONC is collaborating with Fenway Health and its EHR developer, athenahealth, to encode SDOH data captured with an assessment tool that uses the IHE Assessment Collection and Data Capture (ACDC) profile. This project will help establish the technical feasibility of using a common standard to represent assessment results. ONC and IHE will share the findings to advance ACDC development and implementation. Ultimately, the goal is to allow organizations to choose from a variety of instruments that can be integrated using a common interface to capture and share SDOH data.