Patient-Reported Outcomes through Health IT Project (PRO Project)

Patient-reported outcomes (PROs) refers to any information providing the status of a patient’s health outcome which comes directly from the patient without interpretation of that patient’s response by a clinician or anyone else. PROs are relevant to clinical care and research yet are not routinely available in electronic form. The Advancing the Collection and Use of Patient-Reported Outcomes (PRO) through Health IT project Patient-Reported Outcomes through Health IT Project , funded by the Patient-Centered Outcomes Research Trust Fund, aimed to address this challenge. The goals of the project were to:  

  • identify barriers related to electronic capture of PROs,
  • develop technical specifications to improve electronic capture of PROs,
  • test the technical specifications in clinical settings using electronic health record systems,  
  • communicate challenges and successes related to implementing the technical specifications, and
  • identify gaps in technical specifications and suggest improvements.

As part of the project, ONC developed and pilot-tested an HL7 FHIR-based implementation specification in three pilot organizations. The organizations tested it in different environments, for different use cases and provided feedback to continue refinement of the specification. Download the ONC PRO Project and Implementation Guide Webinar presentation [PDF - 2.7 MB] to learn more.

Check back this fall for more information about the PRO Project, including the final report.  

Content last reviewed on September 19, 2019
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