With stakeholder input, ONC developed a set of foundational elements intended to inform and advance SDOH information exchange initiatives. These 11 foundational elements include a range of topics such as community readiness and stewardship; values and principles; policy and governance; and technical infrastructure and data standards. The SDOH Information Exchange Learning Forum explores these foundational elements and brings together health care providers, community-based organizations, government, payers, health information exchange networks, IT platform developers, innovators, and other partners to share lessons learned, challenges, and promising practices related to exchanging SDOH data.
Leading Edge Acceleration Projects (LEAP) in Health IT tackle the creation of new standards, methods, and tools to improve care delivery and advance research capabilities. Several of the LEAP awards are conducting projects related to SDOH data exchange and registries, APIs, and closed-loop referrals. These projects engage a wide range of stakeholders including developers, Federally Qualified Health Centers (FQHCs), standards development organizations, community organizations, providers, and many more.
Among the various objectives under the Public Health Emergency Response Related HL7 Standards, Solutions, and Future Pandemics Cooperative Agreement, HL7 will develop, advance, and harmonize SDOH standards through the use of FHIR and APIs to enhance SDOH data exchange. Developing and advancing the FHIR resources and APIs will help to give providers access to data that can be used to support the needs of their patients.
The STAR HIE Program is a cooperative agreement program that is designed to strengthen and expand the ability of health information exchanges (HIEs) to support public health agencies in their response to public health emergencies and pandemics. The STAR HIE Program builds upon federal investments in HIEs and leverages work from the industry to advance HIE services for the benefit of public health.
ONC’s Health IT Playbook supports clinicians, administrators, and medical practice staff in efforts to leverage health IT to identify, understand, and address SDOH needs for their patients and the communities they serve. It describes how the ability to capture and access SDOH data can empower clinicians to work with individuals to support their health goals – and to improve health outcomes and reduce health disparities. SDOH data can also help clinical practices identify health disparities and take action to improve health equity.
The Advancing Standards for Precision Medicine (ASPM) project is responsible for the development and testing of standards for new and diverse types of health data, including SDOH data. A demonstration project tested the Integrating the Healthcare Enterprise Assessment Curation and Data Collection (IHE ACDC) profile, which was developed by the ASPM project team to capture SDOH data through assessments and questionnaires.
This ONC-led project aims to advance the interoperability of SDOH data by supporting efforts to conduct data tagging and by assessing the feasibility of developing electronic clinical decision support that incorporates SDOH data. Data tagging can help enable the movement of sensitive SDOH data. eCDS can enable the integration of SDOH decision-making data into clinical workflows, making it more likely that SDOH information will be utilized as a part of care delivery.
SDOH Interoperability Resources
- SDOH Information Exchange Learning Forum 2022-2023: Summary TakeawaysOver the course of nine webinars, the learning forum brought together more than 2,400 people including healthcare providers, community-based organizations (CBO), government agencies, payers, health information exchange (HIE) networks, digital platform developers, innovators, associations, academia, philanthropic groups, and more. This report provides an informative summary and overview from the learning forum sessions.
- SDOH Information Exchange ToolkitONC developed a toolkit based on the foundational elements that support states, payers, community-based services entities, and other stakeholders with the implementation of SDOH-based data exchange within their communities. The toolkit will include considerations for applying health IT standards, infrastructure, and interoperability.
- Social Determinants of Health (SDOH) Clinical Decision Support (CDS) Feasibility BriefA standardized approach to clinical decision support (CDS) using SDOH factors can enable clinical practice guidelines to become part of routine care delivery. The SDOH CDS information brief explores how clinical practice guidelines that include SDOH factors present an opportunity to advance health equity and improve health outcomes.