References

Introduction

¹Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

² The long awaited end of meaningful use. Definitive Healthcare. (2016, January 19). Retrieved from http://www.definitivehc.com/hospital-information-technology/medicare-meaningful-use-program?source=newsltr-blog&utm_source=newsletter&utm_medium=email&utm_campaign=02-02-16

³ EHR Incentives & Certification: Meaningful use definition & objectives. (2015, February 6). Retrieved from https://www.healthit.gov/providers-professionals/meaningful-use-definition-objectives

⁴ Emont, S. (2011, May). Measuring the impact of patient portals: what the literature tells us. Retrieved from http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/PDF%20M/PDF%20MeasuringImpactPatientPortals.pdf [PDF – 610KB]

⁵ Patient access to online health action plans enhances rate of preventive care. (2016, February 9). Retrieved from http://share.kaiserpermanente.org/article/patient-access-to-online-health-action-plans-enhances-rate-of-preventive-care/; http://www.ajpmonline.org/article/S0749-3797%2815%2900780-1/abstract

⁶ Emont, S. (2011, May). Measuring the impact of patient portals: what the literature tells us. Retrieved from http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/PDF%20M/PDF%20MeasuringImpactPatientPortals.pdf [PDF – 610KB]

Chapter 1

⁷ Goel, M.S.; Brown, T.L.; Williams, A.; Cooper, A.J.; Baker, D.W. (2011). Patient-reported barriers to enrolling in a patient portal. Journal of the American Medical Informatics Association, 18(1), i8-i12. doi: 10.1136. Retrieved from https://jamia.oxfordjournals.org/content/18/Supplement_1/i8

⁸ Clain, D. (2015, July 30). athenaResearch Study: the current state of patient portal adoption. Retrieved from http://www.athenahealth.com/blog/2015/07/30/athenaresearch-study-the-current-state-of-patient-portal-adoption

⁹ Siddhanti, R. Mana Health. (Personal communication, 2016, February 11).

¹⁰ ManaPortal signup process and screenshots: Siddhanti, R. Mana Health. (Personal communication, 2016, February 19).

¹¹ Friedman, R. (2015, August 3). How practices get patients to use their portals. Call-out box Retrieved from https://www.advisory.com/research/medical-group-strategy-council/practice-notes/2015/august/what-we-know-about-portal-adoption-part-2

¹² Clain, D. (2015, July 30). athenaResearch Study: the current state of patient portal adoption. Retrieved from http://www.athenahealth.com/blog/2015/07/30/athenaresearch-study-the-current-state-of-patient-portal-adoption

¹³ http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3041333/

¹⁴ Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

¹⁵ About Blue Button. Retrieved from https://www.healthit.gov/patients-families/blue-button/about-blue-button

¹⁶ Henry, J.; Pylypchuk, Y.; Patel, V. Electronic Capabilities for Patient Engagement among U.S. Non-Federal Acute Care Hospitals: 2012–2015. (No. 38, September 2016). Retrieved from http://dashboard.healthit.gov/evaluations/data-briefs/hospitals-patient-engagement-electronic-capabilities-2015.php

¹⁷ Patel, V.; Barker, W.; Siminerio, E. Trends in Consumer Access and Use of Electronic Health Information. (No. 30, October 2015). Retrieved from https://www.healthit.gov/sites/default/files/briefs/oncdatabrief30_accesstrends_.pdf [PDF - 2.1 MB]

¹⁸ Charles, D.; Gabriel, M.; Henry, J. Electronic Capabilities for Patient Engagement among U.S. Non-Federal Acute Care Hospitals: 2012–2014 (No. 29, October 2015). Retrieved from https://www.healthit.gov/sites/default/files/briefs/oncdatabrief29_patientengagement.pdf [PDF - 1.9 MB]

¹⁹ Strategies for improving patient engagement through health IT. Retrieved from https://www.healthit.gov/sites/default/files/final_vdt_sect_508_tested.pdf [PDF – 2.6MB]

Chapter 2

²⁰ DelVecchio, A. (2014, December 16). Expansion of online appointment scheduling could lead to cost savings. Retrieved from http://searchhealthit.techtarget.com/blog/Health-IT-Pulse/Expansion-of-online-appointment-scheduling-could-lead-to-cost-savings

²¹ Patient Engagement: Digital self-scheduling set to explode. Retrieved from https://www.accenture.com/us-en/insight-patient-engagement-digital-self-scheduling-explode

²² Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

²³ Kaiser Permanente 2014 Annual Report. Retrieved from http://share.kaiserpermanente.org/static/kp_annualreport_2014/

²⁴ Timely access to scheduled appointments. Journal of the American Medical Informatics Association, 5(1), 104-111. Retrieved from https://healthy.kaiserpermanente.org/health/care/consumer/…/d5/L2dBISEvZ0FBIS9nQSEh/

²⁵ Timely access to scheduled appointments. Journal of the American Medical Informatics Association, 5(1), 104-111. Retrieved from https://healthy.kaiserpermanente.org/health/care/consumer/…/d5/L2dBISEvZ0FBIS9nQSEh/

²⁶ Use Secure Electronic Messaging. Retrieved from https://www.healthit.gov/providers-professionals/achieve-meaningful-use/core-measures-2/use-secure-electronic-messaging

²⁷ Kane, B., Sands, D.Z. (1998, January 1). Guidelines for the clinical use of electronic mail with patients. Retrieved from http://jamia.oxfordjournals.org/content/5/1/104

²⁸ Kane, B., Sands, D.Z. (1998, January 1). Guidelines for the clinical use of electronic mail with patients. Retrieved from http://jamia.oxfordjournals.org/content/5/1/104

²⁹ Fact Sheet: Using Secure Electronic Messaging to Support Patient and Family Engagement. Retrieved from https://www.healthit.gov/providers-professionals/implementation-resources/fact-sheet-using-secure-electronic-messaging

³⁰ Meaningful Use Case Studies: Patient portal increases communication between patients and providers. (2011, Spring). Retrieved from https://www.healthit.gov/providers-professionals/blackstone-valley-community-health-care-case-study

³¹ Kane, B., Sands, D.Z. (1998, January 1). Guidelines for the clinical use of electronic mail with patients. Retrieved from http://jamia.oxfordjournals.org/content/5/1/104

³² Kane, B., Sands, D.Z. (1998, January 1). Guidelines for the clinical use of electronic mail with patients. Retrieved from http://jamia.oxfordjournals.org/content/5/1/104

³³ Fact Sheet: Using Secure Electronic Messaging to Support Patient and Family Engagement. Retrieved from https://www.healthit.gov/providers-professionals/implementation-resources/fact-sheet-using-secure-electronic-messaging

³⁴ Silvestre, A.-L.; Sue, V.M.; Allen, J.Y. (2009, March/April). If you build it, will they come? The Kaiser Permanente model of online health care. Health Affairs, 28(2), 334-344. doi 10.1377/hithaff.28.2.334. Retrieved from http://content.healthaffairs.org/content/28/2/334.full

³⁵ Emont, S. (2011, May). Measuring the impact of patient portals: what the literature tells us. Retrieved from http://www.chcf.org/~/media/MEDIA%20LIBRARY%20Files/PDF/PDF%20M/PDF%20MeasuringImpactPatientPortals.pdf [PDF – 610KB]

³⁶ Meaningful Use Case Studies: Patient portal benefits patient care and provider workflow. (2011, Winter). Retrieved from https://www.healthit.gov/providers-professionals/patient-portal-benefits-patient-care-and-provider-workflow

³⁷ Kessels, R.P.C. (2003, May). Patients’ memory for medical information. Journal of the Royal Society of Medicine, 96(5), 219-222. Retrieved from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC539473/

³⁸ OpenNotes: Inviting patients to read their doctors’ visit notes. Retrieved from https://www.opennotes.org/research/inviting-patients-to-read-their-doctors-notes-patients-and-doctors-look-ahead-patient-and-physician-surveys/

³⁹ OpenNotes: Inviting patients to read their doctors’ visit notes. Retrieved from https://www.opennotes.org/research/inviting-patients-to-read-their-doctors-notes-patients-and-doctors-look-ahead-patient-and-physician-surveys/

⁴⁰ Siminerio, E.; Daniel, J.G. (2014, June 24). Patients play a vital role in improving the quality of information in their medical records. Retrieved from https://www.healthit.gov/buzz-blog/consumer/blue-button-helps-patients-improve-care-quality/

⁴¹ Delbanco, T.; Walker, J.; Bell, S.K.; Darer, J.D.; Elmore, J.G.; Farag, N.; Feldman, H.J.; Mejilla, R.; Ngo, L.; Ralston, J.D.; Ross, S.E.; Trivedi, N.; Vodicka, E.; Leveille, S.G. (2012, October 2). Annals of Internal Medicine, 157(7), 461-470. Retrieved from http://annals.org/article.aspx?articleid=1363511

⁴² What is OpenNotes? Retrieved from http://www.opennotes.org/about-opennotes/

⁴³ Unitan, R. and Seidel, M. Sharing Visit Notes Online: Kaiser Permanente Northwest’s Big Bang Implementation of OpenNotes. (PowerPoint presentation, 2015, September 2). Retrieved from Kaiser Permanente Northwest.

⁴⁴ Unitan, R. and Seidel, M. Sharing Visit Notes Online: Kaiser Permanente Northwest’s Big Bang Implementation of OpenNotes. (PowerPoint presentation, 2015, September 2). Retrieved from Kaiser Permanente Northwest.

⁴⁵ Alpert J.M., Krist A.H., Aycock R.A., Kreps G.L. (2016, May 17). Applying Multiple Methods to Comprehensively Evaluate a Patient Portal’s Effectiveness to Convey Information to Patients. Retrieved from http://www.jmir.org

Chapter 3

⁴⁶ Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

⁴⁷ Wolff J.L., Darer J.D., Larsen K.L. Family Caregivers and Consumer Health Information Technology. J Gen Intern Med. 2016 Jan;31(1):117-21. doi: 10.1007/s11606-015-3494-0

⁴⁸ Bourgeois, F.C.; Taylor, P.L.; Emans, J.; Nigrin, D.J.; Mandl, K.D. (2008, December). Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. Journal of the American Medical Informatics Association, 15(6), 737–743. doi 10:1197/jamia.M2865. Retrieved from http://www.hl7.org/documentcenter/public_temp_7CA39230-1C23-BA17-0CBCDEB8D0B8876C/wg/pedsdata/Fabienne%20JAMIA%20paper%20(2).pdf [PDF – 78KB]

⁴⁹ Bourgeois, F.C.; Nigrin, D.J.; Harper, M.B. (2015, May). Pediatrics perspectives. Preserving patient privacy and confidentiality in the era of personal health records. Journal of Adolescent Health, 135(5), e1125-e1127. Retrieved from http://pediatrics.aappublications.org/content/135/5/e1125

⁵⁰ Jasik, C. (2005, February). UCSF goes live with teen patient portal. Retrieved from https://russcucina.org/tag/ucsf/

⁵¹ Retrieved from https://www.coloradohealth.org/portal-support-non-english-speaking-patients

Chapter 4

⁵²Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

⁵³ HIM Body of Knowledge™. Retrieved from http://bok.ahima.org/

⁵⁴ 45 Code of Federal Regulations 164.502(g). Cornell University Legal Information Institute. Uses and disclosures of protected health information: general rules. Retrieved from https://www.law.cornell.edu/cfr/text/45/164.502

⁵⁵ Wolff J.L., Darer J.D., Larsen K.L. Family Caregivers and Consumer Health Information Technology. J Gen Intern Med. 2016 Jan;31(1):117-21. doi: 10.1007/s11606-015-3494-0

⁵⁶ 45 Code of Federal Regulations 164.510(b). Cornell University Legal Information Institute. Uses and disclosures requiring an opportunity for the individual to agree or to object. Retrieved from https://www.law.cornell.edu/cfr/text/45/164.510

⁵⁷ 45 Code of Federal Regulations 164.510(b). Cornell University Legal Information Institute. Uses and disclosures requiring an opportunity for the individual to agree or to object. Retrieved from https://www.law.cornell.edu/cfr/text/45/164.510

⁵⁸ Wolff J.L., Kim V.S., Mintz S., Stametz R., Griffin J.M. An environmental scan of shared access to patient portals. J Am Med Inform Assoc. 2017 Aug 25. doi: 10.1093/jamia/ocx088

⁵⁹ Wolff J.L., Darer J.D., Larsen K.L. Family Caregivers and Consumer Health Information Technology. J Gen Intern Med. 2016 Jan;31(1):117-21. doi: 10.1007/s11606-015-3494-0

⁶⁰ Wolff J.L., Kim V.S., Mintz S., Stametz R., Griffin J.M. An environmental scan of shared access to patient portals. J Am Med Inform Assoc. 2017 Aug 25. doi: 10.1093/jamia/ocx088

⁶¹ Retrieved from http://www.ajmc.com/journals/issue/2016/2016-vol22-n6/development-of-a-tethered-personal-health-record-framework-for-early-end-of-life-discussions

⁶² Retrieved from https://patientengagementhit.com/news/how-patient-portals-can-improve-advance-care-planning-talks

Chapter 5

⁶³ Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

⁶⁴ Patel V & Johnson C. (February 2018). Consumers' use of online medical records and devices for health needs. ONC Data Brief, no.40. Office of the National Coordinator for Health Information Technology: Washington DC. Retrieved from https://www.healthit.gov/sites/default/files/page/2018-03/HINTS-2017-Consumer-Data-Brief-3.21.18.pdf [PDF - 1.7 MB]

⁶⁵ Patient-Generated Health Data. (2015, September 30). Retrieved from https://www.healthit.gov/policy-researchers-implementers/patient-generated-health-data

⁶⁶ National Learning Consortium. (2014, March). Patient-Generated Health Data Fact Sheet. Retrieved from https://www.healthit.gov/sites/default/files/patient_generated_data_factsheet.pdf [PDF – 1.6MB]

⁶⁷ Centers for Medicare & Medicaid Services. (2016, April). Readmissions Reduction Program. Retrieved from https://www.cms.gov/medicare/medicare-fee-for-service-payment/acuteinpatientpps/readmissions-reduction-program.html

⁶⁸ The Digital Consumer: How Patient Generated Health Data and Health IT Can Help Improve Care. Retrieved from https://www.healthit.gov/buzz-blog/consumer/digital-consumer-patient-generated-health-data-improve-care/

⁶⁹ National Learning Consortium. (2014, March). Patient-Generated Health Data Fact Sheet. Retrieved from https://www.healthit.gov/sites/default/files/patient_generated_data_factsheet.pdf [PDF – 1.6MB]

⁷⁰ Lavallee, D.; Chenok, K.; Love, R.; Petersen, C.; Holve, E.; Segal, C.; and Franklin, P. (2016). Incorporating Patient-Reported Outcomes Into Health Care to Engage Patients and Enhance Care. Health Affairs, 35(4), doi: 10.1377/hlthaff.2015.1362. Retrieved from http://content.healthaffairs.org/content/35/4/575.full?ijkey=6C1y7.jaIT7qU&keytype=ref&siteid=healthaff#aff-1

⁷¹ National Learning Consortium. (2014, March). Patient-Generated Health Data Fact Sheet. Retrieved from https://www.healthit.gov/sites/default/files/patient_generated_data_factsheet.pdf [PDF – 1.6MB]

⁷² Ochsner Health System first epic client to fully integrate with Apple HealthKit Call-out box: Retrieved from https://news.ochsner.org/news-releases/ochsner-health-system-first-epic-client-to-fully-integrate-with-apple-healt

⁷³ Develop health and fitness apps that work together. Retrieved from https://developer.apple.com/healthkit/

⁷⁴ Nield, D. (2016, April 27). 25 essential fitness apps that work with Apple Health: updated Apple Health compatible apps and devices for complete health tracking. Retrieved from http://www.wareable.com/sport/apps-that-work-with-apple-health-kit-compatible

⁷⁵ Ochsner Health System first epic client to fully integrate with Apple HealthKit Call-out box: Retrieved from https://news.ochsner.org/news-releases/ochsner-health-system-first-epic-client-to-fully-integrate-with-apple-healt

⁷⁶ Ochsner Health system first in nation to manage chronic diseases with Apple Watch. (2014). Retrieved from https://news.ochsner.org/news-releases/ochsner-health-system-first-in-nation-to-manage-chronic-diseases-with-apple

⁷⁷ Ochsner Health System continues to transform healthcare with “Optimal Hospital”: innovative program uses Apple Watch, iPad and iPhone to introduce a new model for care as a way to manage efficiencies in hospital care. (2016, February 24). Retrieved from https://news.ochsner.org/news-releases/ochsner-health-system-continues-to-transform-healthcare-with-optimal-hospital/

⁷⁸ Access to MyCarolinas is easy. (2016) Retrieved from https://my.carolinashealthcare.org/login.aspx?ReturnUrl=%2fdefault.aspx

⁷⁹ Carolinas HealthCare System. Retrieved from https://www.healthit.gov/sites/default/files/carolinas_healthcare_commitment.pdf [PDF – 153KB]

⁸⁰ Broderick, A. (2013, January). Case Studies in Telehealth Adoption. Partners HealthCare: connecting heart failure patients to providers through remote monitoring. Commonwealth Fund Publication 1656, 3. Retrieved from http://www.commonwealthfund.org/~/media/files/publications/case-study/2013/jan/1656_broderick_telehealth_adoption_partners_case_study.pdf [PDF – 610KB]

⁸¹ Remote monitoring program for heart failure patients significantly lowers hospital admissions: less intensive remote monitoring follow-up may improve long-term outcomes. (2015, May 13). Retrieved from http://connectedhealth.partners.org/news-and-events/media-center/announcements/heart-failure-remote-monitoring-program-significantly-lowers-hospital-admissions.aspx

⁸² Agboola, S.; Jethwani, K.; Khateeb, K.; Moore, S.; Kvedar, J. (2015). Heart failure remote monitoring: Evidence from the retrospective evaluation of a real-world remote monitoring program. Journal of Medical Internet Research, 17(4), e101. doi:10.2196/jmir.4417. Retrieved from http://www.jmir.org/2015/4/e101

⁸³ Broderick, A. (2013, January). Case Studies in Telehealth Adoption. Partners HealthCare: connecting heart failure patients to providers through remote monitoring. Commonwealth Fund Publication 1656, 3. Retrieved from http://www.commonwealthfund.org/~/media/files/publications/case-study/2013/jan/1656_broderick_telehealth_adoption_partners_case_study.pdf [PDF – 610KB]

⁸⁴ Agboola, S.; Jethwani, K.; Khateeb, K.; Moore, S.; Kvedar, J. (2015). Heart failure remote monitoring: Evidence from the retrospective evaluation of a real-world remote monitoring program. Journal of Medical Internet Research, 17(4), e101. doi:10.2196/jmir.4417. Retrieved from http://www.jmir.org/2015/4/e101

⁸⁵ Remote monitoring program for heart failure patients significantly lowers hospital admissions: less intensive remote monitoring follow-up may improve long-term outcomes. (2015, May 13). Retrieved from http://connectedhealth.partners.org/news-and-events/media-center/announcements/heart-failure-remote-monitoring-program-significantly-lowers-hospital-admissions.aspx

⁸⁶ Broderick, A. (2013, January). Case Studies in Telehealth Adoption. Partners HealthCare: connecting heart failure patients to providers through remote monitoring. Commonwealth Fund Publication 1656, 3. Retrieved from http://www.commonwealthfund.org/~/media/files/publications/case-study/2013/jan/1656_broderick_telehealth_adoption_partners_case_study.pdf [PDF – 610KB]

⁸⁷ Broderick, A. (2013, January). Case Studies in Telehealth Adoption. Partners HealthCare: connecting heart failure patients to providers through remote monitoring. Commonwealth Fund Publication 1656, 3. Retrieved from http://www.commonwealthfund.org/~/media/files/publications/case-study/2013/jan/1656_broderick_telehealth_adoption_partners_case_study.pdf [PDF – 610KB]

⁸⁸ Broderick, A. (2013, January). Case Studies in Telehealth Adoption. Partners HealthCare: connecting heart failure patients to providers through remote monitoring. Commonwealth Fund Publication 1656, 3. Retrieved from http://www.commonwealthfund.org/~/media/files/publications/case-study/2013/jan/1656_broderick_telehealth_adoption_partners_case_study.pdf [PDF – 610KB]

⁸⁹ Orlando, L.A.; Hauser, E.R.; Christianson, C.; Powell, K.P.; Buchanan, A.H.; Chesnut, B.; Agbaje, A.B.; Henrich, V.C.; Ginsburg, G. (2011, October 11). Protocol for implementation of family health history collection and decision support into primary care using a computerized family health history system. BMC Health Services Research 11, 264. doi: 10.1186/1472-6963-11-264. Retrieved from http://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-11-264

⁹⁰ Orlando, L.A.; Hauser, E.R.; Christianson, C.; Powell, K.P.; Buchanan, A.H.; Chesnut, B.; Agbaje, A.B.; Henrich, V.C.; Ginsburg, G. (2011, October 11). Protocol for implementation of family health history collection and decision support into primary care using a computerized family health history system. BMC Health Services Research 11, 264. doi: 10.1186/1472-6963-11-264. Retrieved from http://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-11-264

⁹¹ Orlando, L.A.; Hauser, E.R.; Christianson, C.; Powell, K.P.; Buchanan, A.H.; Chesnut, B.; Agbaje, A.B.; Henrich, V.C.; Ginsburg, G. (2011, October 11). Protocol for implementation of family health history collection and decision support into primary care using a computerized family health history system. BMC Health Services Research 11, 264. doi: 10.1186/1472-6963-11-264. Retrieved from http://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-11-264

⁹² Wu, R.R.; Himmel, T.L.; Buchanan, A.H.; Powell, K.P.; Hauser, E.R.; Ginsburg, G.S.; Henrich, V.C.; Orlando, L.A. (2014, February 13). Quality of family history collection with use of a patient facing family history assessment tool. doi: 10.1186/1471-2296-15-31. Retrieved from https://bmcfampract.biomedcentral.com/articles/10.1186/1471-2296-15-31

⁹³ Orlando, L.A.; Hauser, E.R.; Christianson, C.; Powell, K.P.; Buchanan, A.H.; Chesnut, B.; Agbaje, A.B.; Henrich, V.C.; Ginsburg, G. (2011, October 11). Protocol for implementation of family health history collection and decision support into primary care using a computerized family health history system. BMC Health Services Research 11, 264. doi: 10.1186/1472-6963-11-264. Retrieved from http://bmchealthservres.biomedcentral.com/articles/10.1186/1472-6963-11-264

⁹⁴ Fast Healthcare Interoperability Resources overview. Retrieved from https://www.hl7.org/fhir/overview.html

⁹⁵ Time to focus on your family tree. (2015, December 15). Call-out box: Retrieved from https://today.duke.edu/2015/12/metree