Tracy Okubo

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Tracy Okubo's Latest Blog Posts

Labs on FHIR: Sharing Genetic Test Results

Tracy Okubo | January 7, 2021

The use of genetic testing is becoming increasingly routine in patient care. For example, tests are available to check newborns for genetic disorders, screen would-be parents for carrier status, inform cancer care, and evaluate potential pharmacogenetic associations. However, the laboratories that perform these tests face many challenges that keep them from being able to return clinical genomic results in a standardized way and fully leverage a patient’s electronic health record. This also affects healthcare professionals’ ability to deliver precision medicine and conduct precision medicine research.

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Taking a LEAP: Transposing the Apps Model for Individual Health Records to Population Health

Tracy Okubo | December 18, 2020

Because of advances in interoperability, it’s becoming increasingly common for people and their healthcare providers to access and share information from electronic health records (EHRs) using apps. Could this same approach allow large-scale data sharing between healthcare provider organizations, payors (Medicare, Medicaid, and private insurers), or public health officials? An app providing shared insights into a common dataset could transform the way value-based care is delivered and measured.

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LEAPing into Action: New Awards Ignite Health IT Research and Care

Tracy Okubo | September 23, 2020

Today, ONC announced the latest awards under its Leading Edge Acceleration Projects (LEAP) in Health Information Technology (Health IT) funding opportunity, which supports innovation to address emerging challenges and advance the development and use of interoperable health IT. These projects tackle creation of new standards, methods, and tools, such as application programing interfaces (APIs) and mobile applications (apps), to improve care delivery and advance research capabilities.

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Clinical Genomics Data for Precision Medicine

Tracy Okubo | April 22, 2020

Genomic data—information about the complete set of genes that make up each individual—have the potential to revolutionize healthcare and usher in a new era of precision medicine and scientific discovery. However, there is currently no standard way of presenting genomic data, and the standards for integrating those data with electronic health record (EHR) and other health information technology (IT) systems remain under development.

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Standards for Everyday Life: Integrating Emerging Health Data to Advance Precision Medicine

Tracy Okubo | April 9, 2020

We know SDOH—the conditions in which people live, learn, work, and play—impact our health, delivery of care, and coordination of services in many ways. However, SDOH data are often captured outside the healthcare setting, and this information is not shared consistently during the course of care. Meanwhile, the increasing use of sensors and wearables provides a unique opportunity to capture “care between care,” allowing patients, caregivers, and clinicians to monitor health status and adjust treatment as needed.

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