Health Data

Portrait of Brenda Akinnagbe

Improving Data Infrastructure for Intellectual and Developmental Disabilities

Brenda Akinnagbe | September 26, 2022

July 26, 2022, marked the 32nd anniversary of the Americans with Disabilities Act (ADA). In celebration of this landmark civil rights law, the Office of the Assistant Secretary for Planning and Evaluation (ASPE) published a report called Improving Data Infrastructure for Patient-Centered Outcomes Research for People with Intellectual and Developmental Disabilities (IDD).

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Portrait of Stephanie Garcia

Accelerating Patient-Centered Outcomes Research through Synthetic Health Data Generation

Stephanie Garcia | September 19, 2022

Real world health data are critical for Patient-Centered Outcomes Research (PCOR). However, it’s often difficult, expensive, and time consuming for researchers to access real-world clinical health data because of privacy concerns, security restrictions, and usage issues. Although PCOR researchers, health information technology developers, and informaticists often depend on anonymized or de-identified clinical health data for testing theories, data models, algorithms, and prototype innovations, re-identification of anonymized data remains a possible security risk. Synthetic health data can provide a no-risk data source to complement research and support testing needs until real clinical health data are available.

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Portrait of Kathryn Marchesini

Minimizing Risks and Maximizing Rewards from Machine Learning

Kathryn Marchesini | September 7, 2022

When talking about artificial intelligence (AI) today, people are usually referring to predictive models—often driven by machine learning (ML) techniques—that “learn” from historic data and make predictions, recommendations, or classifications (outputs) which inform or drive decision making. The power of ML is in its enormous flexibility. You can build a model to predict or recommend just about anything, and we have seen it transform many sectors.

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Portrait of Mera Choi

APIs for Research: Perspectives from App Developers and Data Integrators

Mera Choi | June 13, 2022

In ONC’s “App Developer and Data Integrator Perspectives” report [PDF – 511 KB] (Perspectives Report) – the third in the “Accelerating APIs” report series – we assess the current landscape of API-based health information exchange in a rapidly evolving electronic health data ecosystem. Perspectives of app developers and data integrators are presented to understand the emerging landscape of technology companies and their role in effective data aggregation, integration, and exchange.

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