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- Articles by: Stephanie Garcia
Stephanie Garcia's Latest Blog Posts
Accelerating Patient-Centered Outcomes Research through Synthetic Health Data Generation
Stephanie Garcia | September 19, 2022
Real world health data are critical for Patient-Centered Outcomes Research (PCOR). However, it’s often difficult, expensive, and time consuming for researchers to access real-world clinical health data because of privacy concerns, security restrictions, and usage issues. Although PCOR researchers, health information technology developers, and informaticists often depend on anonymized or de-identified clinical health data for testing theories, data models, algorithms, and prototype innovations, re-identification of anonymized data remains a possible security risk. Synthetic health data can provide a no-risk data source to complement research and support testing needs until real clinical health data are available.Read Full Post.
APIs for Research: Perspectives from Providers
Stephanie Garcia | August 3, 2022
The Cures Act Final Rule includes regulatory requirements to implement secure, standards-based application programming interfaces (APIs). To support the acceleration of API adoption in health care, ONC has published a series of perspective reports that focus on key stakeholders and their views on APIs.Read Full Post.
Sharing Genomic Data for Patient Care – Sync for Genes Phase 4 Wraps Up
Stephanie Garcia | June 21, 2022
The Sync for Genes program, launched by ONC in 2017 in partnership with the National Institutes of Health’s All of Us Research Program, aims to enable the sharing of standardized genomic information among laboratories, providers, patients, and researchers by advancing the development and use of industry-supported standards, such as the Health Level Seven International® (HL7®) Fast Healthcare Interoperability Resources® (FHIR®) standard.Read Full Post.
APIs for Research: Perspectives from App Developers and Data Integrators
Stephanie Garcia | June 13, 2022
In ONC’s “App Developer and Data Integrator Perspectives” report [PDF – 511 KB] (Perspectives Report) – the third in the “Accelerating APIs” report series – we assess the current landscape of API-based health information exchange in a rapidly evolving electronic health data ecosystem. Perspectives of app developers and data integrators are presented to understand the emerging landscape of technology companies and their role in effective data aggregation, integration, and exchange.Read Full Post.
A Strong Start: Enhancing Newborn Screening for Precision Public Health
Stephanie Garcia | October 15, 2020
As the capability to sequence an individual’s genome or exome continues to expand—and the cost continues to fall—more states are considering how next generation sequencing (NGS) could support their newborn screening programs, which test approximately four million babies born in the United States each year for congenital, treatable diseases.
Results from NGS can help enhance newborn screening programs by providing more information beyond traditional biochemical and other tests. Not all states have the expertise needed to interpret NGS results,