What are patient-generated health data?

Patient-generated health data (PGHD) are health-related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern.

PGHD include, but are not limited to:

  • health history
  • treatment history
  • biometric data
  • symptoms
  • lifestyle choices

PGHD are distinct from data generated in clinical settings and through encounters with providers in two important ways:

  1. Patients, not providers, are primarily responsible for capturing or recording these data.
  2. Patients decide how to share or distribute these data to health care providers and others.

Examples include blood glucose monitoring or blood pressure readings using home health equipment, or exercise and diet tracking using a mobile app or wearable device.