Healthcare providers expend many resources to ensure that patient data are submitted according to clinical registry specifications. This means that providers often must re-verify data. Registries also can have other data challenges, such as slow retrieval time, incompleteness, inaccuracy, and a lack of integration into provider workflows.
These challenges make administering registries more difficult by increasing costs and complexity while reducing providers’ abilities to discover new, essential insights from the data, particularly those that address quality and improvement.
The Chesapeake Regional Information System for our Patients (CRISP), in partnership with the American College of Cardiology (ACC), is working to build upon known standards and systems—such as the Health Level Seven International® (HL7®) Fast Healthcare Interoperability Resources® (FHIR®) standard — that will allow healthcare organizations to accelerate the adoption of modern data standards without increasing provider burden.
The project team will develop a solution and an implementation guide that is scalable to all hospitals contributing to National Cardiovascular Disease Registries (NCDR) and other registries. They will leverage a Substitutable Medical Applications, Reusable Technologies (SMART) on FHIR application programming interface (API) and work with health systems and their vendors to develop a pilot solution that will extract data according to the FHIR standard.
This project addresses the Leading Edge Acceleration Projects (LEAP) in Health Information Technology (Health IT) fiscal year 2020 special area of interest 1: Advancing Registry Infrastructure for a Modern API-based Health IT Ecosystem.
This project began in 2020 and will end in 2022.
The goals of this project are to:
- Reduce provider burden and operational expenses by capturing key data elements from new and old electronic health records (EHRs).
- Develop a framework for integrating registries into provider workflows by using and further constraining the FHIR standard and Bulk FHIR Implementation Guide through a new clinical research network (CRN) framework FHIR implementation guide.
- Build on the lessons learned from the Women’s Health Technologies CRN FHIR Implementation Guide, allowing registries to focus on the insights and knowledge gained from the data rather than cleaning and validating data.
- Leverage SMART on FHIR by allowing CRISP to securely access APIs.
- Scale the clinical registries’ abilities to acquire existing and novel data from across the country and demonstrate how EHR systems can sustainably support integration with clinical registries.