Patient Generated Health Data

Why are the use and sharing of patient-generated health data (PGHD) important?

The use and sharing of PGHD supplements existing clinical data, filling in gaps in information and providing a more comprehensive picture of ongoing patient health. The use and sharing of PGHD in care delivery and research can:

  • Gather important information about how patients are doing between medical visits.
  • Provide information for use in shared decision-making about preventive and chronic care management.
  • Offer potential cost savings and improvements in quality, care coordination, and patient safety.

ONC is addressing the opportunities and challenges that the use of PGHD may present now and in the coming years.


What are patient-generated health data? Read More

Patient-generated health data (PGHD) are health-related data created, recorded, or gathered by or from patients (or family members or other caregivers) to help address a health concern.

What are the PGHD-related criteria in the health IT rules? Read More

How has ONC approached the use of PGHD so far? Read More

ONC has identified the use of PGHD as an important issue for advancing patient engagement, care delivery, and research. ONC has initiated a series of activities, including a draft white paper, to gain more information about its value and approaches to implementing it.

What opportunities and challenges does the use of patient-generated health data present? Read More

Where can providers find resources for integrating the use of PGHD into their practice? Read More

How has ONC approached the use of PGHD in the past? Read More

ONC began a public dialogue on the topic in 2012 that has informed its regulatory work over the years and still continues today.

Content last reviewed on September 15, 2017
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