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Research & Innovation

PHR Ignite

State Health Policy Consortium -- PHR Pilots


PHR Ignite was an activity of the ONC’s State Health Policy Consortium (SHPC), established in 2010 to give states resources needed to develop solutions to challenges preventing or impeding health information exchange across state lines. The PHR Ignite project [PDF - 506 KB] was initiated under the SHPC to support the use of a variety of PHRs through pilot programs that provided patients access to their health information. These patients used a non-tethered PHR, which is not connected to a provider’s electronic health record (EHR) system. The project also provided formative research to support work in consumer engagement through the use of PHRs.

As the work of the SHPC ends in 2014, we can see that health information is being exchanged between patients and their providers.

Key Findings

  • MD Anderson Cancer Center conducted data exchange from their in-house patient portal to a non-tethered PHR. A test patient Continuity of Care Record (CCR) was exchanged via Direct Secure Messaging to the test non-tethered PHR.

    Technology with a Human Touch

  • Children’s Medical Center in Dallas exchanged a Continuity of Care Document (CCD) via Direct Secure Messaging to a patient’s non-tethered PHR. The patients enrolled as part of a pilot program for sickle cell anemia patients.
  • The National Association for Trusted Exchange (NATE) conducted bidirectional exchange with pilot participants in Oregon, Alaska and California. Providers sent data to patients and patients sent data to providers using Direct Secure Messaging. Data formats exchanged included CCR, CCD, and consolidated clinical document architecture (C-CDA). NATE is launching Phase 2 of the PHR Ignite project by recruiting new contributors and participants.
  • The American Medical Informatics Association (AMIA) developed a training and education framework to aid implementation of consumer-mediated exchange.
  • HealthInsight in Utah and New Mexico identified PHR functionalities that are most effective and useful to consumers and providers. They also conducted a pilot to demonstrate bidirectional exchange of biometric data from a patient’s non-tethered PHR to a primary care provider.