Data Element
Radiation Therapy Outcome/Disease Status
Description

Status of the disease treated with radiation therapy at the time of the record.
This is vital information both for clinical care and for public health policy
The AAPM Operational Ontology for Radiation Oncology ( https://aapmbdsc.azurewebsites.net) noted a Delphi process to identify standard values recommended for classification. These were

Under Treatment

No evidence of disease (NED)

Stable Disease

Partial Response

Progressive Disease

Indeterminate (possible pseudo-progression)

Complete Response

Biochemical Recurrence

Primary Recurrence

Local Recurrence

Nodal Recurrence

Distant Recurrence

In OORO for each instance record of a Cancer Patient Treatment Outcome, multiple values of Disease Status can be selected e.g. Biochemical Recurrence, Nodal Recurrence
Submitted By: Charles Mayo / University of Michigan
Data Element Information
Use Case Description(s)
Use Case Description Categorization of disease response to treatment outcome. All instances record the Patient Age and/or the Date at the time of assigning the Patient Treatment Outcome. This information is vital to understanding effectiveness of treatment approaches and for public heath policy guidance
Estimate the breadth of applicability of the use case(s) for this data element All cancer care providers
Healthcare Aims
  • Improving patient experience of care (quality and/or satisfaction)
  • Improving the health of populations
  • Reducing the cost of care
  • Improving provider experience of care
Maturity of Use and Technical Specifications for Data Element
Applicable Standard(s) N/A
Additional Specifications N/A
Current Use In limited use in production environments
Supporting Artifacts Snomed CT SCTID- 716618008; NCI Thesarus NCITC- C18919 ; NCIMT- C1518681}
Extent of exchange N/A
Potential Challenges
Restrictions on Standardization (e.g. proprietary code) No restrictions
Restrictions on Use (e.g. licensing, user fees) None
Privacy and Security Concerns None
Estimate of Overall Burden Minor effort to implement collection with positive impact for providers, referrals, and institutions
ONC Evaluation Details
Each submitted Data Element has been evaluated based on the following criteria. The overall Level classification is a composite of the maturity based on these individual criteria. This information can be used to identify areas that require additional work to raise the overall classification level and consideration for inclusion in future versions of USCDI
Criterion #1
Maturity - Current Standards		 Level 2 - Data element is represented by a terminology standard or SDO-balloted technical specification or implementation guide.
Criterion #2
Maturity - Current Use 		Level 2 - Data element is captured, stored, or accessed in multiple production EHRs or other HIT modules from more than one developer.
Criterion #3
Maturity - Current Exchange		 Level 2 - Data element is electronically exchanged between more than two production EHRs or other HIT modules of different developers using available interoperability standards.
Criterion #4
Use Case(s) - Breadth of Applicability		 Level 0 - Use cases apply to a limited number of care settings or specialties, or data element represents a specialization of other, more general data elements.
Evaluation Comment This represents a subset of other data elements Problems or Encounter Diagnosis, thus represents narrower breadth of applicability.

Comment

Submitted by randifkudner on

This proposal is far more…

This proposal is far more thorough and complete for oncologic care than the proposed oncology outcomes data element. The name should be broadened beyond radiation therapy and serve as the overall oncology outcomes data set.

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