Submitted by nedragarrett_CDC on
CDC's Consolidated Comment for USCDI v4
- Recommend updating the applicable standards language with the following: “At a minimum, the Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997, must be used. If needed, a detailed list of race and ethnicity categories must be captured using the CDC detailed Race and Ethnicity code system (CDCREC). The CDCREC detailed concepts are an expansion of and roll-up to the OMB minimum race and ethnicity categories. “
- Comment from CSTE: CSTE agrees with CDC's recommendation to align with CDC Race and Ethnicity Code System (see: PHIN VADS). Regarding implementation, if EHRs cannot display all coded values, they should have a mechanism to convert data into coded values in a way that meets jurisdictional reporting requirements. Additional revision may be necessary as OMB revises Statistical Policy Directive 15 (Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity).
Submitted by Janice on
combined race and ethnicity
OMB recently finalized a proposal made about a year ago that combines race and ethnicity into a single concept, adds Middle Eastern and North African as a new major category, and offers the option to provide a more detailed ethnicity than currently captured among other changes. By the time USCDI v5 is likely to be used in regulation those changes will be several years along and likely starting to be absorbed/used in the real world. We suggest ONC consider whether it makes sense to adopt those changes in USCDI v5 or, if not, to at least consider a plan for how it will move to support those changes in the future.