Data Element

Information from the submission form
Radiation Therapy Outcome/Disease Status
Description

Status of the disease treated with radiation therapy at the time of the record.
This is vital information both for clinical care and for public health policy
The AAPM Operational Ontology for Radiation Oncology ( https://aapmbdsc.azurewebsites.net) noted a Delphi process to identify standard values recommended for classification. These were

Under Treatment

No evidence of disease (NED)

Stable Disease

Partial Response

Progressive Disease

Indeterminate (possible pseudo-progression)

Complete Response

Biochemical Recurrence

Primary Recurrence

Local Recurrence

Nodal Recurrence

Distant Recurrence

In OORO for each instance record of a Cancer Patient Treatment Outcome, multiple values of Disease Status can be selected e.g. Biochemical Recurrence, Nodal Recurrence

Submitted By: Charles Mayo / University of Michigan
Data Element Information
Use Case Description(s)
Use Case Description Categorization of disease response to treatment outcome. All instances record the Patient Age and/or the Date at the time of assigning the Patient Treatment Outcome. This information is vital to understanding effectiveness of treatment approaches and for public heath policy guidance
Estimated number of stakeholders capturing, accessing using or exchanging All cancer care providers
Healthcare Aims
  • Improving patient experience of care (quality and/or satisfaction)
  • Improving the health of populations
  • Reducing the cost of care
  • Improving provider experience of care
Maturity of Use and Technical Specifications for Data Element
Applicable Standard(s) N/A
Additional Specifications N/A
Current Use In limited use in production environments
Supporting Artifacts Snomed CT SCTID- 716618008; NCI Thesarus NCITC- C18919 ; NCIMT- C1518681}
Number of organizations/individuals with which this data element has been electronically exchanged N/A
Potential Challenges
Restrictions on Standardization (e.g. proprietary code) No restrictions
Restrictions on Use (e.g. licensing, user fees) None
Privacy and Security Concerns None
Estimate of Overall Burden Minor effort to implement collection with positive impact for providers, referrals, and institutions
ONC Evaluation Details
Each submitted Data Element has been evaluated based on the following 4 criteria. The overall Level classification is a composite of the maturity based on these individual criteria. This information can be used to identify areas that require additional work to raise the overall classification level and consideration for inclusion in future versions of USCDI
Maturity – Standards/Technical Specifications Level 1/2 - Must be represented by a vocabulary standard or an element of a published technical specification
Maturity - Current Use Level 2 - Used at scale in more than 2 different production environments
Maturity - Current Exchange Level 2 - Demonstrates exchange between 4 or more organizations with different EHR/HIT systems
Breadth of Applicability - # Stakeholders Impacted Comment Level - Used by few stakeholders, or for narrowly defined conditions or events
Evaluation Comment This represents a subset of other data elements Problems or Encounter Diagnosis, thus represents narrower breadth of applicability.

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