Data used to categorize individuals for identification, records matching, and other purposes.

Data Element

Additional Information

Race

Applicable Vocabulary Standard(s)

Applicable Standards
Both standards are required
  • The Office of Management and Budget Standards for Maintaining, Collecting, and Presenting Federal Data on Race and Ethnicity, Statistical Policy Directive No. 15, as revised, October 30, 1997
  • CDC Race and Ethnicity Code Set Version 1.2 (July 2021)

Comment

AAPM - OORO Support for Patient Reported Race

The AAPM Operational Ontology for Radiation Oncology ( https://aapmbdsc.azurewebsites.net) noted several systems for identifying Patient Reported Race .  HL7 Reference system was recommended as the primary system. https://www.hl7.org/fhir/v3/Race/cs.html Note that OORO named the element Patient Reported Race rather than Race, to emphasize that this characterization of the patient should be selected by the patient, not a second party. Patients note that the value selected for them by a provider can be  incorrect.

CDC's comment on behalf of ASTHO (WA DOH)

Subject: Additional values in the valueset
  • Comments: Meeting the needs of different racial groups, many race groups are categorized by country specifically but some race groups have origin in a certain country/region but the current generations now live in multiple countries due to different reasons. Accurate identification of these groups will help attain health equity based on the unique needs of the racial groups.
New Race values proposed for addition to the value set with code as ‘PHVS_Race_CDC’ and valueset name as ‘Race Value Set’ is as follows:
  • Afro-Carribean
  • Cham
  • Chicano/a or Chicanx
  • Congolese
  • Cuban
  • Eritrean
  • First Nations
  • Indigenous-Latino/a or Indigenous-Latinx
  • Jordanian
  • Karen
  • Kenyan
  • Kuwaiti
  • Mestizo
  • Mien
  • Moroccan
  • Oromo
  • Puerto Rican
  • Romanian/Rumanian
  • Russian
  • Saudi Arabian
  • Somali
  • South African
  • Ugandan
  • Ukranian
  • Yemeni
  • Patient declined to respond/Asked but unknown
  • Unknown

Additional values in the value set

Meeting the needs of different racial groups, many race groups are categorized by country specifically but some race groups have origin in a certain country/region but the current generations now live in multiple countries due to different reasons. Accurate identification of these groups will help attain health equity based on the unique needs of the racial groups. New Race values proposed for addition to the value set with code as ‘PHVS_Race_CDC’ and valueset name as ‘Race Value Set’ is as follows:  
  • Afro-Carribean
  • Cham
  • Chicano/a or Chicanx
  • Congolese
  • Cuban
  • Eritrean
  • First Nations
  • Indigenous-Latino/a or Indigenous-Latinx
  • Jordanian
  • Karen
  • Kenyan
  • Kuwaiti
  • Mestizo
  • Mien
  • Moroccan
  • Oromo
  • Puerto Rican
  • Romanian/Rumanian
  • Russian
  • Saudi Arabian
  • Somali
  • South African
  • Ugandan
  • Ukranian
  • Yemeni
  • Patient declined to respond/Asked but unknown
  • Unknown

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