|Submitted By: Grace Cordovano / Enlightening Results|
|Data Element Information|
|Use Case Description(s)|
|Use Case Description||Individuals living with disabilities face barriers to receiving proper medical care when their doctors and care teams are not aware of existing disabilities. Consequently, these barriers exacerbate health disparities and result in inferior care and poor outcomes. Appointments may need to be rescheduled, care may not be coordinated properly, breakdowns in communication and trust will also negatively impact patient care without carefully documenting disability status. If properly documented, an alert could notify appropriate care team members and staff to address any physical access barriers, arrange for interpreters, plan for various forms of communication and patient support tools.
Applications for disability benefits could be further automated and streamlined with the addition of this data element.
If we are going to improve the lives and care of individuals living with disabilities, we must prioritize capturing and sharing this data accordingly.
|Estimated number of stakeholders capturing, accessing using or exchanging||Over 61 million (roughly 1 in 4) adults in the United States live with a disability. https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html#:~:text=61%20million%20adults%20in%20the,is%20highest%20in%20the%20South.|
|Maturity of Use and Technical Specifications for Data Element|
|Current Use||Not currently captured or accessed with an organization|
|Number of organizations/individuals with which this data element has been electronically exchanged||N/A|
|Restrictions on Standardization (e.g. proprietary code)||Unknown|
|Restrictions on Use (e.g. licensing, user fees)||Unknown|
|Privacy and Security Concerns||Unknown|
|Estimate of Overall Burden||Unknown|
|ONC Evaluation Details
Each submitted Data Element has been evaluated based on the following 4 criteria. The overall Level classification is a composite of the maturity based on these individual criteria. This information can be used to identify areas that require additional work to raise the overall classification level and consideration for inclusion in future versions of USCDI
|Maturity – Standards/Technical Specifications||Level 1/2 - Must be represented by a vocabulary standard or an element of a published technical specification|
|Maturity - Current Use||Comment Level - Used in limited test environments or pilots|
|Maturity - Current Exchange||Comment Level - Demonstrates limited exchange with external organizations, on same or different EHR/HIT systems|
|Breadth of Applicability - # Stakeholders Impacted||Level 1 - Used by many, but not most, patients, providers or events requiring its use|