| Submitted By: Grace Cordovano / Enlightening Results | |
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| Data Element Information | |
| Use Case Description(s) | |
| Use Case Description | Individuals living with disabilities face barriers to receiving proper medical care when their doctors and care teams are not aware of existing disabilities. Consequently, these barriers exacerbate health disparities and result in inferior care and poor outcomes. Appointments may need to be rescheduled, care may not be coordinated properly, breakdowns in communication and trust will also negatively impact patient care without carefully documenting disability status. If properly documented, an alert could notify appropriate care team members and staff to address any physical access barriers, arrange for interpreters, plan for various forms of communication and patient support tools. Applications for disability benefits could be further automated and streamlined with the addition of this data element. If we are going to improve the lives and care of individuals living with disabilities, we must prioritize capturing and sharing this data accordingly. |
| Estimated number of stakeholders capturing, accessing using or exchanging | Over 61 million (roughly 1 in 4) adults in the United States live with a disability. https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html#:~:text=61%20million%20adults%20in%20the,is%20highest%20in%20the%20South. |
| Healthcare Aims |
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| Maturity of Use and Technical Specifications for Data Element | |
| Applicable Standard(s) | N/A |
| Additional Specifications | http://hl7.org/fhir/us/ecr/2021Jan/StructureDefinition-disability-status.html |
| Current Use | Not currently captured or accessed with an organization |
| Number of organizations/individuals with which this data element has been electronically exchanged | N/A |
| Potential Challenges | |
| Restrictions on Standardization (e.g. proprietary code) | Unknown |
| Restrictions on Use (e.g. licensing, user fees) | Unknown |
| Privacy and Security Concerns | Unknown |
| Estimate of Overall Burden | Unknown |
Assessments of a health-related matter of interest, importance, or worry to a patient, patient’s family, or patient’s healthcare provider that could identify a need, problem, or condition.
Data Element |
Information from the submission form |
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| Accommodation |
Description
Provides information or details regarding modifications, tools, technologies, and/or other supports needed in order to address any barriers to care that an individual living with a disability(ies) may need in order to improve their care and life with a diagnosis.
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