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Patient Demographics

Data Element

Additional Information

Gender Identity
Description
A person’s internal sense of being a man, woman, both, or neither.

Applicable Vocabulary Standard(s)

Applicable Standards
Gender Identify must be coded in accordance with SNOMED CT® and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor, attributed as follows:
  • Male. 446151000124109
  • Female. 446141000124107
  • Female-to-Male (FTM)/Transgender Male/Trans Man. 407377005
  • Male-to-Female (MTF)/Transgender Female/Trans Woman. 407376001
  • Genderqueer, neither exclusively male nor female. 446131000124102
  • Additional gender category or other, please specify. nullFlavor OTH
  • Choose not to disclose. nullFlavor ASKU
Adopted at 45 CFR 170.207(o)(2)

Comment

Gender Identity should be promoted

While I have some concerns with the sentiments noted in the "Rationale for Separate Consideration" I absolutely agree with the summary consideration that Gender Identity is a critical piece of information about people in the course of clinical care. It is distinct from other representations of sex-oriented identities, such as whatever administrative sex might be. It should be noted that Gender Identity is something that is expressed by an individual, is not assigned by any other entity (such as a parent.) Gender Identity is not something that should be used as a surrogate for physiologic sex-oriented clinical observations; instead I would like to see a separate data element that we like to call Sex For Clinical Use (SFCU). Please note that Gender Identity is NOT the element to capture information indicating if a person has gone through a transgender process, which would be best captured via clinical observations (that could properly be masked if needed.) Many transgender individuals will properly indicate Male or Female as their gender identity. 

Promote to USCDI V2

MedMorph supports the addition of the Gender Identity element and believes it should be promoted to V2. Gender Identity is important for measuring the impact of disease and outcomes across populations. It is also beneficial in the Healthcare Survey domain since it is used to guide the provider and staff about how to interact with the patient. Also, HL7 has just completed an informative ballot: "Gender Harmony - Modeling Sex and Gender Representation, Release 1".

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