Desired state to be achieved by a patient.

Data Element

Additional Information

Care Experience Preference
Description
Person's goals, preferences, and priorities for overall experiences during their care and treatment. Examples include but are not limited to honoring religious beliefs, and conditions of the care environment.

Applicable Vocabulary Standard(s)

Applicable Standards
  • Logical Observation Identifiers Names and Codes (LOINC®) version 2.73

Comment

PACIO Comments on Care Experience Preference

Advance “Care Experience Preference” to USCDI Level 2: The current data element of “Care Experience Preference” provides details on a person’s preferences for their care experience based on cultural, religious or spiritual, and personal preferences. The need and maturity of this data element has been validated by the PACIO Community. Over the past year multiple organizations have used both of these CDA and FHIR standards to share this important patient generated information. In addition, the CDA guidance has been balloted twice within HL7, the FHIR IG currently is resolving dispositions to comments from the January 2022 ballot..
  • There is a LOINC Code that represents this data element (81338-6 Patient Goals, preferences, and priorities for care experience) and it is included in both CDA and FHIR IGs defining standardized exchange of advance directive information.
  • There is a well-established value set for representing care experience preferences. (Care Experience Preferences at End of Life Grouping, urn:oid:2.16.840.1.113762.1.4.1115.11)
  • The PACIO Community strongly recommends this data element be advanced to USCDI Level 2.

Care Experience Preference- PACIO supports Level 2 advancement

The PACIO Project strongly supports advancement of the data element “Care Experience Preference” to USCDI Level 2. Established February 2019, the PACIO Project is a collaborative effort between industry, government, and other stakeholders, with the goal of establishing a framework for the development FHIR implementation guides to facilitate health information exchange. The PACIO community is open to all interested parties and currently includes over 50 individuals and organizations. On behalf of the PACIO Project leadership team, the PACIO Community voted 9/29/21 and unanimously supports the document and recommendations as posted 9/28/21 by Lisa R Nelson. PACIO members were involved in the creation of that document based on experiences in advance directive content adjudication and FHIR implementation guide development.

Advance “Care Experience Preference” to USCDI Level 2

The current data element of “Care Experience Preference” provides details on a person’s preferences for their care experience based on cultural, religious or spiritual, and personal preferences.  The need and maturity of this data element has been validated by the PACIO community. Over the past year multiple organizations have used both of these CDA and FHIR standards to share this important patient generated information.  In addition, the CDA guidance has been balloted twice within HL7, the FHIR IG is preparing to be balloted in January 2022.
  • There is a LOINC Code that represents this data element (81338-6 Patient Goals, preferences, and priorities for care experience) and it is included in both CDA and FHIR IGs defining standardized exchange of advance directive information. 
  • There is a well-established value set for representing care experience preferences. (Care Experience Preferences at End of Life Grouping, urn:oid:2.16.840.1.113762.1.4.1115.11)
We strongly recommend this data element be advanced to USCDI Level 2.

USCDIv3 ADI_Comments_20210927v3_1.pdf

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