|Submitted By: Raymonde Uy / National Association of Community Health Centers (NACHC)|
|Data Element Information|
|Use Case Description(s)|
|Use Case Description||Incarceration is a risk factor for many chronic conditions such as HIV and Hepatitis C
Legal problems are inextricably linked to health problems. Oftentimes, people are made ill or have their access to healthcare threatened because laws are not enforced or poorly written, and because benefits are wrongfully denied. (National Center for Medical-Legal Partnership)
|Estimated number of stakeholders capturing, accessing using or exchanging||All federally qualified health centers (FQHCs) using PRAPARE gather data about incarceration. This encompasses, in 2019, 29 million patients at 1400+ FQHCs with more than 13000 health care delivery sites. The evaluation of social determinants of health, however, should be considered a required component of a patient-centered, value-based approach to care and therefore should be potentially relevant for any patient or care setting.|
|Maturity of Use and Technical Specifications for Data Element|
|Applicable Standard(s)||Z56.0 Conviction in civil and criminal proceedings without imprisonment
Z65.1 Imprisonment and other incarcerations
(Include children concepts) 365565007 - Finding of legal affairs and legal constraints (finding)
93025-5 - Protocol for Responding to and Assessing Patients' Assets, Risks, and Experiences [PRAPARE]
|Current Use||Extensively used in production environments|
Community Health Centers, Health Center Controlled Networks and Primary Care Associations routinely capture these data elements in different electronic health record systems
|Number of organizations/individuals with which this data element has been electronically exchanged||5 or more. This data element has been tested at scale between multiple different production environments to support the majority of anticipated stakeholders.|
Commercial vendors including Aunt Bertha, UNITEUS and NowPow consume PRAPARE data and use it to link individual patients to social interventions.
|Restrictions on Standardization (e.g. proprietary code)||None|
|Restrictions on Use (e.g. licensing, user fees)||The PRAPARE tool has very minimal licensing and user fees.
|Privacy and Security Concerns||None|
|Estimate of Overall Burden||Low burden, especially for healthcare institutions that routinely cater to the target demographic and geographic catchment area.|
Information from the submission form
In the past year, have you spent more than 2 nights in a row in a jail, prison, detention center, or juvenile correctional facility? ☐ Yes ☐ No ☐ I choose not to answer this question
Submitted by RUy on 2022-09-30
Incarceration History as SDOH data element under USCDI or ISANACHC would like to resupport this data element for consideration / inclusion to USCDIv3. All federally qualified health centers (FQHCs) gather SDOH data, which includes a focus on this data element through the PRAPARE screening tool. This data is relevant to and encompasses in 2019 29 million patients at 1400+ FQHCs with more than 13000 health care delivery sites. If this data element is not considered for addition to USCDI, we would like to comment on it's addition to ISA as a coded data element under SDOH, with applicable standards and representation accross ICD-10-CM, SNOMED-CT and LOINC. Please see attached document supporting this.
2022-09-30 NACHC USCDIv3 Letter of Support_9.pdf