Submitted by nedragarrett_CDC on 2022-04-28
CDC's Consolidated Comment
- Viral hepatitis: Due date is collected as part of routine case surveillance for acute Hepatitis A, B, C, and chronic hepatitis B and C. Promote this data element as it is integral to understanding maternal and child health in relation to exposure to disease conditions
- STD - congenital syphilis: this is very helpful for the reasons above (Treatment needed to start 30 days before delivery and risk of prematurity). it would help care providers and HD know how close the female is to delivery and might help them prioritize cases. Additionally, if the test date and due date are the same date and the female has no prior treatment, it will immediately let the HD know that there is an infant that needs follow.
- CSTE strongly recommends that pregnancy status be included in USCDI v3. However, a single variable is not sufficient to capture critical data that is needed for a large variety of conditions affecting the public's health, including maternal mortality, Hepatitis B and C, COVID-19, Zika, syphilis, and influenza, to name only a few. CSTE urges the inclusion of the following variables in the core data for exchange - as defined by the ONC Public Health Task Force on Capturing Pregnancy Data in Electronic Health Records and found here https://www.healthit.gov/sites/default/files/facas/HITJC_PHTF_Meeting_Slides_2017-03-30_0.pdf
- Pregnancy Status - Yes, No, Possible, Unknown
- Date pregnancy status recorded
- Estimated delivery date
- Pregnancy outcome
- Date of pregnancy outcome, and optionally
- Postpartum status (this is important since if the mother recently gave birth and is diagnosed with a condition that could affect the neonate, public health action might be indicated).
- Currently there are large gaps in the ability for data from electronic health records or ELR to capture sufficient pregnancy information to identify cases and measure the burden and outcome of medical conditions and infections in pregnancy on a population level. Standardizing these data for exchange would be a substantial step forward.
- Finally, it is very important for electronic health records to develop a way to link the mother and infant records. A unique identifier for the mother which can be included in the infant's record, and a similar unique identifier for the infant which can be included in the mother's records would help to rectify this problem, which would be beneficial for both clinical care as well for public health when we receive data on mothers and infants but cannot link them (important for diseases such as listeria, Zika, syphilis, Hepatitis B, and others)
Submitted by nedragarrett_CDC on 2022-09-28
CDC's comment on behalf of CSTECSTE Comment: