|Type||Standard Implementation/Specification||Standards Process Maturity||Implementation Maturity||Adoption Level||Federally required||Cost||Test Tool Availability|
|Limitations, Dependencies, and Preconditions for Consideration||Applicable Value Set(s) and Starter Set(s)|
NCPDP currently uses sex/gender values of (M)ale, (F)emale and (U)nknown. NCPDP is evaluating future modifications to include additional gender identity concepts.
Please consider appropriate vocabulary for preferred pronoun. It would be extremely helpful to improve the patient-provider experience.
We think that the Applicable Value Set(s) and Starter Set(s) provide appropriate answer options to measure current gender identity. We also encourage the Office of the National Coordinator of Health Information Technology to encourage providers to ask the patient what pronoun and name the patient uses, use that pronoun and name when interacting with the patient, and enter this information into the Electronic Health Record. Knowledge of this information is essential to providing affirming health care to transgender patients.
Chris Grasso, MPH
Associate Vice President for Informatics and Data Services
Please consider also a standard for preferred pronoun. Assuming gender based on the first name or registered sex and/or gender preference can present challenges to health care providers and their teams. In 2013, the World Professional Association for Trangender Health Electronic Medical Record Workging Group published recommendations for how gender should be recorded in EHRs. These recommendations specify that “Preferred Name, gender identity and pronoun preference, as defined by the patient, be included as demographic variables collected in the EHR.