Reporting Cancer Cases to Public Health Agencies

Type	Standard / Implementation Specification	Standards Process Maturity	Implementation Maturity	Federally required	Cost	Test Tool Availability
Implementation Specification	North American Association of Central Cancer Registries, Inc. (NAACCR), Standards for Cancer Registries, Volume V, Pathology Laboratory Electronic Reporting, Version 4.0, published April 2011	Final	Production	Yes	Free	Yes Yes
Implementation Specification	Implementation Guide for Ambulatory Healthcare Provider Reporting to Central Cancer Registries, August 2012	Final	Production	Yes	Free	Yes
Implementation Specification	HL7® CDA® Release 2 Implementation Guide: Reporting to Public Health Cancer Registries from Ambulatory Healthcare Providers, Release 1, DSTU Release 1.1 – US Realm	Balloted Draft	Production	Yes	Free	Yes
Emerging Implementation Specification	IHE Quality, Research, and Public Health Technical Framework Supplement, Structured Data Capture, Trial Implementation	Balloted Draft	Production	No	Free	No

Limitations, Dependencies, and Preconditions for Consideration	Applicable Security Patterns for Consideration
Stakeholders should refer to the health department in their state or local jurisdiction to determine onboarding procedures, obtain a jurisdictional implementation guide if applicable, and determine which transport methods are acceptable for submitting cancer reporting date as there may be jurisdictional variation or requirements. Some jurisdictions may not support cancer case reporting at this time. Note that the NAACCR specification listed has not been vetted through a Voluntary Consensus Standards Body (VCSB), however it references the HL7 V 2.5.1 standard and LOINC, and has been sponsored by a number of organizations working in the cancer registry space. See CDA and IHE projects in the Interoperability Proving Ground. The NAACCR standards are used by grantees funded by CDC’s National Program of Cancer Registries (NPCR). Additional detail on the NPCR standards, for both interoperability and programmatic requirements can be found here: https://www.cdc.gov/cancer/npcr/standards.htm.”	Secure Communication – Create a secure channel for client-to-server and server-to-server communication. Secure Message Router – Securely route and enforce policy on inbound and outbound messages without interruption of delivery. Authentication Enforcer – Centralized authentication processes. Authorization Enforcer – Specifies access control policies. Credential Tokenizer – Encapsulate credentials as a security token for reuse (e.g., SAML, Kerberos). Assertion Builder – Define processing logic for identity, authorization and attribute statements. User Role – Identifies the role asserted by the individual initiating the transaction. Purpose of Use – Identifies the purpose for the transaction.

Limitations, Dependencies, and Preconditions for Consideration

Applicable Security Patterns for Consideration

Stakeholders should refer to the health department in their state or local jurisdiction to determine onboarding procedures, obtain a jurisdictional implementation guide if applicable, and determine which transport methods are acceptable for submitting cancer reporting date as there may be jurisdictional variation or requirements. Some jurisdictions may not support cancer case reporting at this time.
Note that the NAACCR specification listed has not been vetted through a Voluntary Consensus Standards Body (VCSB), however it references the HL7 V 2.5.1 standard and LOINC, and has been sponsored by a number of organizations working in the cancer registry space.
See CDA and IHE projects in the Interoperability Proving Ground.
The NAACCR standards are used by grantees funded by CDC’s National Program of Cancer Registries (NPCR). Additional detail on the NPCR standards, for both interoperability and programmatic requirements can be found here: https://www.cdc.gov/cancer/npcr/standards.htm.”

Secure Communication – Create a secure channel for client-to-server and server-to-server communication.
Secure Message Router – Securely route and enforce policy on inbound and outbound messages without interruption of delivery.
Authentication Enforcer – Centralized authentication processes.
Authorization Enforcer – Specifies access control policies.
Credential Tokenizer – Encapsulate credentials as a security token for reuse (e.g., SAML, Kerberos).
Assertion Builder – Define processing logic for identity, authorization and attribute statements.
User Role – Identifies the role asserted by the individual initiating the transaction.
Purpose of Use – Identifies the purpose for the transaction.

Comment

Submitted by chris.baumgart… on 2022-09-20

WA State Department of Health Cancer Comments

Washington State Department of Health appreciates having the standards listed on the “Reporting Cancer Cases to Public Health Agencies” page and does not have any recommended changes at this time.

Submitted by goelalex on 2021-11-01

IHE Structured Data Capture, Trial Implementation

IHE Quality, Research, and Public Health Technical Framework Supplement, Structured Data Capture, Trial Implementation This supplement has been implemented in many Anatomic pathology practices. A large portion pathologists in North America use the CAP eCCs, which are based on SDC to fill out their pathology reports since 2019. It is/was being used in the digital bridge initiative as well.

Submitted by chris.baumgart… on 2021-09-29

WA State Department of Health Cancer Comments

Submitted by meddco on 2019-07-26

Digital in Healthcare

Hello, The cancer cases are increasing nowadays and according to online research, healthcare should be available to everyone to fight against the diseases. The initiative by Public Health Agencies are recommendable for the future of civilians.

Submitted by shellyspiro on 2018-10-01

Pharmacy HIT Collaborative's Comments on ONC's Proposed 2018 ISA

The Pharmacy HIT Collaborative supports the addition of HL7 Clinical Document Architecture (CDA), Release 2.0, Final Edition, as well as the balloted drafts HL7 CDA Release 2 Implementation Guide: Reporting to Public Health Cancer Registries from Ambulatory Healthcare Providers, Release 1, DSTU Release 1.1 (US Realm) and IHE Quality, Research, and Public Health Technical Framework Supplement, Structured Data Capture, Trial Implementation.

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Reporting Cancer Cases to Public Health Agencies

Comment

WA State Department of Health Cancer Comments

IHE Structured Data Capture, Trial Implementation

WA State Department of Health Cancer Comments

Digital in Healthcare

Pharmacy HIT Collaborative's Comments on ONC's Proposed 2018 ISA

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