Submitted by rmcclure on 2023-04-17
Please update the name to Sex Parameter of Clinical Use (SPCU)
Per the Gender Harmony Project as discussed and voted on 2023-04-17. The Gender Harmony Project is not aware of any adoption by the industry of contextual "Sex for Clinical Use" (now known as Sex Parameter for Clinical Use). We are aware of only one system that supports a patient-level Sex Parameter for Clinical Use. Additionally, the industry is considering how SPCU and Ask at Order entry questions should interact for ordering workflows. We expect more work in the industry is necessary before advancing SPCU beyond Level 2. For these reasons, the Gender Harmony Project recommends that:- Rename any references to "Sex for Clinical Use" to "Sex Parameter for Clinical Use". This is the name that will appear in the final standards.
- Monitor for use of SPCU in the industry (currently only one vendor).
- Monitor industry discussions on the use of SPCU vs. use of Ask at Order Entry questions.
- Once there is sufficient adoption, include specific types of SPCU as a data element within existing data classes. For example, "Sex Parameter for Clinical Use" would be a data element within the "Clinical Tests" data class named as "Clinical Test Sex Parameter for Clinical Use" and this change should be driven by industry adoption.
Submitted by NCQA on 2023-09-20
NCQA Comment on Sex Parameter for Clinical Use: for USCDI v5
- Context-Specified Sex Parameter for Clinical Use Elements:
NCQA encourages ONC to expand sex-related data elements to include the Gender Harmony Project data elements Sex Parameter for Clinical Use. Specifically, we recommend:- Updating the submitted data element name to align with the updated Gender Harmony project data element: Sex Parameter for Clinical Use (previously Sex for Clinical Use).
- Adding the context-specific Sex Parameter for Clinical Use elements to the appropriate Data Classes in USCDI (including clinical tests, laboratory, diagnostic imaging, procedures), as recommended by the Gender Harmony Project team.
Including these context-specified elements will begin to enable documentation and exchange of structured data based on clinical observation and reflects a step toward anatomy-based identification of clinical need. This remains a high priority area for NCQA, and we have begun incorporating Sex Parameter for Clinical Use into measure specifications to expand patient population definitions previously specified using only administrative gender. Data standards that enable collection of disaggregated sex- and gender-related data promotes broad health equity and supports health equity in performance measurement as well. We are supportive of Gender Harmony’s work and driving industry adoption.