Comments on: Health IT Research – New Innovation Communities http://www.healthit.gov/buzz-blog/health-innovation/health-it-research-new-innovation-communities/ The Latest on Health Information Technology from ONC Sun, 19 May 2013 19:05:15 +0000 hourly 1 http://wordpress.org/?v=3.5.1 By: Homepage http://www.healthit.gov/buzz-blog/health-innovation/health-it-research-new-innovation-communities/#comment-203622 Homepage Sun, 24 Jun 2012 22:40:01 +0000 http://healthit.hhs.gov/blog/onc/?p=373#comment-203622 … [Trackback]…

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]]> By: Rachel Klein, CPS http://www.healthit.gov/buzz-blog/health-innovation/health-it-research-new-innovation-communities/#comment-9207 Rachel Klein, CPS Fri, 22 Oct 2010 19:05:47 +0000 http://healthit.hhs.gov/blog/onc/?p=373#comment-9207 As someone who uses mental health services, I specifically do not use services at hospitals and other institutions in which Mental Health IT is integrated with Medical IT. Why? I value the privacy of information I disclose to my mental health providers. It is central to my ability to trust and work in psychotherapy on difficult and shame-ridden issues, especially traumatic events in my life. One of these traumatic events happened in an ED, where, due to systemic medical stigma, I came in for a headache and ended up retrained for 16 hours because I didn’t want to be seen in the psych ED for a headache. How did they know I had a psychiatric history when I came to the Emergency Room for treatment of a headache? HIT.

Until physicians and other clinicians change their culture and distance themselves from stigmatizing attitudes towards those of us who have psychiatric histories, I and many other people with diagnoses will not support any integrated system of IT, unless we have direct control of who sees what information. I highly support the Bazelon Center’s recommendations on HIT. For patient-directed care to become a reality, we have to be the ones directing who sees private information, and we must be the ones deciding what is and is not private. Information is power in the medical system, and until the patient has the power, abuses due to stigma will continue. Worst of all, people who want to have help will avoid going to clinicians for “elective” mental health care and “care” will be exclusively coercive.

Rachel A. Klein
Coordinator, Emergency Room Rights Campaign,
Massachusetts, USA

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