Making Patient Access to Their Health Information a Reality

As Americans, we each have the legal right to access our health information held by doctors, hospitals and others that provide health care services for us, thanks to the HIPAA Privacy Rule. But 41 percent Exit Disclaimer say they never have.  Why? In a paper-based health care system, it can be time consuming, expensive, and cumbersome to get copies of your medical records. And what do you do with a stack—or maybe even a room full—of paper health records?

Patient Access to Health Information Means Better Care

Things are changing. ONC is working to get health care providers online and using electronic health records (EHRs). And adoption rates of EHRs are soaring: Hospital adoption of EHR systems has more than doubled since 2009. As our health information becomes digital, getting access to it ourselves—as patients or caregivers—makes a lot more sense. For one thing, we can make sure all of the people who care for us have the information they need to get a complete picture of our health. (Or, for you health IT geeks out there, the patient can act as an “HIE of One”.)

In addition, we can use the health information ourselves to better communicate with providers and peers, better understand our health and treatment options, and make sure health information about us is as accurate and complete as possible. Research shows that engaged patients actually get better-quality health care, and can avoid potential medical errors.

Health Information and eHealth Tools

Last but not least, we can plug data from our electronic health records into a growing number of e-health tools and applications that help us better manage our own personal health and wellness, often outside of the context of traditional health care. Devices such as digital scales and wireless pedometers help us to track key health metrics; smartphone apps provide information, tools, and reminders; and online communities help us to interpret information, receive emotional support, and make choices that support our personal health goals. Eighty percent of Americans Exit Disclaimer who have access to the information in their electronic health records use it, and a full two-thirds of those who don’t yet have electronic access say they want it .

On June 4, ONC joined forces with our federal partners at the White House and the U.S. Department of Veterans Affairs (VA) to host The Patient Access Summit. The purpose of the meeting was to identify and prioritize areas where technical standards and best practices are needed to turbo-charge progress in making patient access to health data a reality. There was a rich diversity of perspectives represented at the meeting—including those of several patients who shared their personal stories of the struggle to get timely information that in some cases meant the difference between life and death.

VA’s Blue Button

When it comes to the technical underpinnings of patient access to  health information stored in EHRs, the “Blue Button” has been a trailblazer. Blue Button is a technical capability that lets individuals download their health or claims information in an easy-to-read format. As of May, nearly a million Americans have clicked on the Blue Button and downloaded their personal health data through federal and private-sector sources.  Blue Button is becoming a recognizable brand for a concept that is new to many people: easy electronic access to your own health information.

So what can we do to make Blue Button even better? Here’s what we heard at the Patient Access Summit:

  1. Enable automated downloads – Currently patients have to refresh their health information by pressing the Blue Button multiple times. Development of a “set it and forget it” or “Auto Blue Button” function would allow such updates to happen automatically based on patient preferences.
  2. Address patient identity proofing and authentication – To help Blue Button to spread while protecting the privacy of patients, we need effective ways to ensure that individuals are who they claim to be.
  3. Establish standards for claims and clinical data content for consumers – Many of the leading health insurance companies have agreed to use Blue Button, but work is needed to define the types of content that patients will receive from them in a standardized way.

Formal Workgroup Structures

ONC will be setting up formal workgroup structures to carry these initiatives forward in the near future. We’ll be asking for volunteers to join us—and the many who have already signed on—in this process. Stay tuned for updates, or send your email address to Erin Poetter, erin.poetter@hhs.gov, if you’d like to be included in the call for volunteers.

Several participants in the June 4 meeting have blogged about their experience. Here are their perspectives:

For More Information

To learn more about patient access to electronic health records and health information technology, visit HealthIT.gov.

17 Comments

  1. SEO Company says:

    i like this blog very much and thanks for sharing…….

  2. markwise says:

    Hi there
    This is a great post and makes me think of where I can fit in.
    Thanks

  3. EHR truly will be able to stream line the process of facilitating the patient/doctor communication process; being able to provide patients with an electronic copy of their medical record is just one more reason why the implementation of EHR is an absolute necessity. I genuinely enjoyed reading this piece…

  4. Hotel Corse says:

    Until I read your article, I thought I was well versed on this subject matter. Making patient access to their health information is indeed always a challenge.

    Thank you for giving me more fresh information to add to my knowledge to make me an even better teacher….

  5. Katie Apex says:

    Patients being able to have access to their own medical data is an important step in modern medicine. Are accident and emergency reports included in the data?

  6. EHR, i think it’s a great thing and should be applicable because this will allow both the Doctors and Patients to communicate better. Anyways, thanks a lot for sharing such great piece of information with us.

  7. Paul Randor says:

    Sounds like some interesting points were made at the summit. Easy access to your own health information is important, because if it is too complicated or takes too much effort, a lot of people won’t make full use of it – even if they have the right to do so. A right has nearly no use if it is not exerted.

  8. ERP is good for Electronic medical record – Billing software, thanx for sharing.

  9. Thanks for keeping me up to date, great stuff!

  10. Thanks for sharing the information.There are many other tools designed in the industry to assist clinicians and patients in managing medical chores. This is one of them.

  11. Definitely agree with this. Thank you for posting, we have legal right to know our health information!

  12. Sonya says:

    Wonderful thanks!

  13. Yes I agree. eHealth tools play important role in healthcare industry. Thanks for sharing such a nice post.

  14. Rahulkapoor says:

    Quite an informative post indeed!!
    The creation of the comprehensive solution when it comes to medical service is foremost. It would be easier for the patients to manage the health related information via mobile devices where the accessibility is simple. The concern is to mainly improve the care setup for a better patient experience with the formulation of the customized health messages from the doctors in time to establish the patient centric care.
    Thanks
    Rahul Kapoor

  15. Mas Harun says:

    For one thing, we can make sure all of the people who care for us have the information they need to get a complete picture of our health

  16. Abdul says:

    This is a great thing. Making patients accessible to their health information enables them to better understand thiier health status and knows how to properly communicate to their physicians for better care. I just have a little problem with information that are potential risk to the patient;s health. Physicians will really need to be careful with the way information is presented without alarming the patient.

Leave a ReplyComment Policy


*